Rare Diseases

Run For Rare
Founder
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Facts

  • 1 in 10 American's are diagnosed with a rare disease
  • Approximately 50% of the people affected by rare diseases are children
  • 95% of rare diseases do not have an FDA approved drug treatment
  • In the United States, a condition is considered “rare” it affects fewer than 200,000 people combined in a particular rare disease group.
"Until there is a cure,
I will not stop running"
Noah Coughlan
Over 7000 known Rare Diseases affect over 30 millions Americans - hundreds of which are citizens of Solano County - among the estimated 350 million people affected globally. For many, there is no cure, treatment, or pathway to hope. 

Run For Rare is a joint effort with NorthBay Healthcare Foundation's Commitment To Care (C2C) to bring attention and awareness to Rare and Undiagnosed families around the world. Run For Rare helps push forward solutions through public advocacy, and collaborations with patients, families, and legislators.

Program Mission

Run for Rare aims to give the rarest of diseases around the world a much needed voice.

Raise Awareness


Run for Rare aims to bring the first ever inaugural and annual Run for Rare 5K to Solano County in Fall 2017. 

Noah Coughlan reached 17 million people and crossed 40 States on his previous three Runs across America in 2011, 2013, and 2015.

Noah Coughlan soon runs International in the Summer of 2017 for Rare Diseases.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days - on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times. 

Noah takes the Run For Rare International in the Summer of 2017.

Contribution By Mail:

Please make your contribution out to: NorthBay Healthcare Foundation with "Run For Rare" in the memo line.

Mail to:
4500 Business Center Drive
Fairfield, CA 94534
501(c)3 Tax Id # 94-2995085